Most parents of toddlers interest astir slumber habits and sniffles, but bosom nonaccomplishment isn’t usually a concern.
It surely wasn’t connected the Thomases’ radar erstwhile their 2-year-old lad went into sudden cardiac arrest successful the mediate of the nighttime astatine their Illinois home.
When the kid woke up screaming, his parents ran into the room.
HODA KOTB REVEALS DAUGHTER'S CONCERNING DIAGNOSIS INFLUENCED HER EXIT FROM 'TODAY'
"Hearing him shriek retired was alarming, arsenic helium usually slept soundly, and it was a horrible cry," Stephanie Thomas told Fox News Digital.
"When I went into his room, helium continued to shriek retired and past face-plant into his crib."

Stephanie and Kris Thomas' 2-year-old lad went into abrupt cardiac apprehension successful the mediate of the nighttime astatine their Illinois home. (Stephanie Thomas/OSF HealthCare)
At first, the Thomases thought their lad was conscionable having a nighttime terror, truthful Stephanie — who is simply a clinical dietitian astatine OSF HealthCare Children’s Hospital of Illinois — sat adjacent to his crib with her manus connected his back, trying to calm him down.
"When helium yet settled, I could consciousness his breathing dilatory travel to a stop," she recalled. "I picked him up retired of his crib and placed him connected the floor. With him being unresponsive, I felt for a pulse and started CPR."
"I was petrified and confused astir however my seemingly steadfast 2-year-old was successful this situation."
"I was petrified and confused astir however my seemingly healthy 2-year-old was successful this situation."
As Stephanie performed CPR, her husband, Kris, called 911.
Emergency responders rushed the lad to OSF HealthCare. After 11 days of testing, helium was diagnosed with Brugada syndrome, a precise uncommon bosom information that tin origin abrupt cardiac apprehension and death.

After 11 days of testing, the 2-year-old was diagnosed with Brugada syndrome, a precise uncommon bosom information that tin origin abrupt cardiac apprehension and death. (Stephanie Thomas/OSF HealthCare)
Though determination tin beryllium immoderate signs of Brugada syndrome, specified arsenic fainting oregon passing out, the information is often not discovered until cardiac apprehension occurs.
The Thomases’ lad had a akin incidental astir a period earlier the cardiac arrest, which they present judge whitethorn person been his archetypal episode.
AI BREAKTHROUGH ALLOWS DOCTORS TO 'SEE' DANGEROUS BLOOD CLOTS FORMING
"He woke up successful the mediate of the nighttime with a horrible scream, had immoderate gasping and was hard to calm," Stephanie recalled. "It was lone a abbreviated period, and erstwhile helium calmed, helium seemed ‘normal.’ We assumed it was a nighttime terror."
As Brugada syndrome is often inherited, the Thomases were some tested for genetic abnormalities, but it was determined that their son's syndrome is simply a "mosaic defect," which is erstwhile determination are 2 oregon much genetically antithetic sets of cells successful the body.

"Our lad acts and appears steadfast much than 99% of the time, until his bosom gets into an arrhythmia that his assemblage and medicine cannot negociate connected their own," Stephanie Thomas told Fox News Digital. (Stephanie Thomas/OSF HealthCare)
The OSF squad implanted the young lad with an EV-ICD (extravascular implantable cardioverter-defibrillator), which is positioned extracurricular the heart's humor vessels. It is designed to observe and close immoderate abnormal bosom rhythms.
This was the archetypal clip the instrumentality was implanted successful a kid astatine specified a young age, the infirmary noted successful a property release.
CLICK HERE TO GET THE FOX NEWS APP
Since the archetypal episode, the Thomases’ lad has been hospitalized six much times. Each clip an abnormal bosom bushed is detected, the EV-ICD delivers a "life-saving shock" to the boy’s heart.
"Our lad acts and appears steadfast much than 99% of the time, until his bosom gets into an arrhythmia that his assemblage and medicine cannot negociate connected their own," Stephanie told Fox News Digital. "In these cases, helium receives a daze from his ICD."
CDC REMOVES COVID VACCINE RECOMMENDATION FOR HEALTHY CHILDREN AND PREGNANT WOMEN
The lad has been readmitted to the infirmary owed to arrhythmias and medicine titration 7 times since his archetypal discharge, his parent added.
Sunita Ferns, M.D., a pediatric electrophysiologist astatine OSF HealthCare Saint Francis Medical Center who is treating the Thomases' son, noted that her young diligent is present "married to cardiology."

The parents said it tin beryllium challenging to navigate the episodes with a 2-year-old who can’t recognize what’s happening. (Stephanie Thomas/OSF HealthCare)
"We show these devices constantly. If we spot immoderate arrhythmia successful the background, contempt the medicine he's on, we tin connection him different technologies," Dr. Ferns said successful the OSF property release.
"Ablative technologies tin assistance modify the substrate, which is the insubstantial that's liable for the atrocious rhythm."
BABY WITH FATAL BRAIN DISORDER ‘SAVED’ BY ANONYMOUS $47K DONATION
To assistance power his arrhythmias, the lad besides takes a compounded oral medication each six hours, which helium volition instrumentality for the remainder of his life.
The parents said it tin beryllium challenging to navigate the episodes with a 2-year-old who can’t recognize what’s happening.

The Thomases present purpose to rise consciousness of the value of having CPR training, being alert to informing signs and putting an exigency program successful place. (Stephanie Thomas/OSF HealthCare)
"The hardest portion is erstwhile helium says things like, ‘I can’t usage the elephant blankie due to the fact that it shocked me,’" Stephanie said. "He makes these associations betwixt being shocked and the objects oregon places astir him."
There are circumstantial triggers for the boy’s arrhythmias, the Thomases person learned, specified arsenic low-grade fevers and adjacent flimsy illnesses, like a cold.
CLICK HERE TO SIGN UP FOR OUR HEALTH NEWSLETTER
"It is captious that we support him arsenic steadfast arsenic we tin — which tin beryllium challenging with him being an progressive 2-year-old and having a 4-year-old," Stephanie said.
"We marque definite that helium stays up to day connected his and our whole family's vaccines. We bash our champion to tightly modulate immoderate temperatures."
"It is captious that we support him arsenic steadfast arsenic we can."
The Thomases present purpose to rise consciousness of the value of having CPR training, being alert to informing signs and putting an exigency program successful place.
As a healthcare employee, Stephanie has maintained her Basic Life Support (BLS) certification for implicit 10 years.
For much Health articles, visit www.foxnews.com/health
"I person ever said that I enactment with doctors and nurses, truthful felt that this was thing I would ne'er usage — but the doctors and nurses were not successful my location the nighttime my lad went into cardiac arrest, truthful it was near to me."
Melissa Rudy is elder wellness exertion and a subordinate of the manner squad astatine Fox News Digital. Story tips tin beryllium sent to melissa.rudy@fox.com.